THE SPECTRUM MOTHERED AND EXPERIENCED: CHALLENGES OF LATE ASD DIAGNOSIS IN MOTHERS OF CHILDREN WITH AUTISM

Abstract

This article discusses the challenges faced by mothers diagnosed late with Autism Spectrum Disorder (ASD) who also have children on the spectrum. From an interdisciplinary perspective, the study analyzes the impacts of late diagnosis on these women’s self-perception, highlighting issues related to atypical motherhood, mental health, and ableism. The study explores how the diagnosis triggers a process of personal rediscovery, often accompanied by feelings of guilt, emotional overload, and challenges in balancing individual identity with parental responsibilities. The analysis engages with the concept of the "performance society,"illustrating how social pressures exacerbate the difficulties these mothers face, including anxiety, depression, and burnout. The study concludes that support networks and inclusive public policies are essential to promote these women’s mental health, ensuring better quality of life and a positive impact on their children’s development. We emphasize the urgency of initiatives that foster health, equity, and support for these women, enabling them to value self-care while fulfilling their essential role in their children’s development.